Saturday, October 10, 2015
My Lupus Story with Lupus Connection
My full story will be up on LUPUS CONNECTION (which I keep saying Lupus Connect in the video). If you're interested in them, please visit http://lupusconnection.net/
Friday, August 14, 2015
Lupus 3D Medical Animation
Monday, August 10, 2015
Public Release: 6-Aug-2015 Kidney impairment decreases blood flow to the brain, boosting risk of brain disorders
Kidney impairment decreases blood flow to the brain, boosting risk of brain disorders
Protecting kidney health may help safeguard the brainAmerican Society of NephrologyHighlights
- In a population-based study, poor kidney function was strongly related to decreased blood flow to the brain.
- Poor kidney function was linked to stroke and dementia most strongly in participants with decreased blood flow to the brain.
- A growing body of research suggests a link between kidney impairment and brain disorders.
Washington, DC (August 6, 2015) — Impaired kidney function may lead to decreased blood flow to the brain, and ultimately to the occurrence of stroke or dementia. The findings, which come from a study appearing in an upcoming issue of the Journal of the American Society of Nephrology (JASN), suggest that maintaining optimal kidney health can provide benefits to the brain. To read more please go to https://neuronsandsynapses.wordpress.com/2015/08/07/poor-kidney-function-decreases-blood-flow-to-brain-increases-risk-of-stroke-and-dementia/From EurekAlert: EurekAlert:Public Release: 6-Aug-2015
Sunday, August 9, 2015
Just Keep Swimming!
Posted on ctlupus.wordpress.com/ by ctlupus
Saturday, August 8, 2015
What to Do About Lupus Hair Loss
If you are among the half of all people with systemic lupus who struggles with this problem, here are some ideas about what you can do about it:
Last resort: cosmetic surgery. For extreme and permanent hair loss, stretching the remaining hair to cover what’s been lost may be an option, or even transplanting hair from another part of the scalp.
FIVE EMPOWERING HABITS
Originally posted on Lupus In Color:
Five Empowering Habits of the Lupus Warrior
1. Complain less and applaud more – Just because you are fighting a hard battle, you make a conscious choice to complain less about the fight and applaud your effort more to overcome the trials of lupus.
2. Speak well over yourself – Speaking to yourself in empowering ways removes the desire to stay still in the pain lupus brings. It also conditions your brain to see the brighter side instead of the hill you are climbing.
3.Be selective in your talk of your battles – Every battle that lupus puts you through is not worthy of discussion with yourself or others. Sometimes the lupus warrior just has to fight and not talk to stay focused on the win.
4.Understand it’s a bad day not a bad life – Lupus brings many difficult days, it doesn’t mean your life is worthless. It simply means you have to put on your battle gear and fight. After all, you’ve won every battle so far, that’s evident in the breath you just took.
5. Value yourself above all lupus issues – Yes, parts of you are broken, but that doesn’t mean you as a whole are broken. Lupus can damage your body, mind and spirit so, its up to you to work hard in keeping strong and keep high value in self worth. You are a warrior that never quits, say it to yourself daily and the warrior will see and focus on your strength, bravery, faith and love beyond anything lupus can bring.
#LupusInColor
Friday, August 7, 2015
About Lupus
In lupus, something goes wrong with your immune system, which is the part of the body that fights off viruses, bacteria, and germs (“foreign invaders,” like the flu). Normally our immune system produces proteins called antibodies that protect the body from these invaders. Autoimmune means your immune system cannot tell the difference between these foreign invaders and your body’s healthy tissues (“auto” means “self”) and creates autoantibodies that attack and destroy healthy tissue. These autoantibodies cause inflammation, pain, and damage in various parts of the body.

Thursday, August 6, 2015
Weight Gain and Lupus.
Many lupus patients are prescribed Prednisone, a steroid that calms the immune system. Unfortunately, Prednisone comes with some side effects that lead to weight gain. Many patients experience an increased appetite and fluid retention, which makes the face and other body parts appear puffy. Here are some tips to combat these side effects and avoid weight gain.Tuesday, August 4, 2015
My name is Chelsea Stark and this is my story.
My new invisible companion is Systemic Lupus Erythematosis. I was diagnosed with it in year: 20015. But I had symptoms since I was 13 years old. I went to the doctor quite a few times and their answer to my problem was not lupus but juvenile arthritis. And treated me as such. My mother my grandmother all had Lupus My mother kept pushing them to test me every year. They tested me I keep popping positive for five of the six markers. Was never all six. So I just kept on going on with my treatment of juvenile arthritis. But never got the relief I wanted or needed.Monday, August 3, 2015
Lupus-related pain is common, but there are medical and non-medical treatments that can help relieve your pain.
f you’ve been diagnosed with lupus, you will probably have to cope with lupus-related pain at some point in the course of your disease. Ninety percent of lupus patients experience some joint or muscle pain, commonly caused by inflammation of the joints.Types of Lupus Pain
First Recipe of the Month! Originally posted on One Step At a Time:
First Recipe of the Month!
- 4 large ripe avocados, pitted, scooped out and diced
- 1/4 cup minced fresh cilantro
- 4 cloves garlic, minced (I use 1 because I’m not a huge garlic fan)
- Juice from 1 lime
- 1 roma tomato
- Salt and pepper to taste
- Tortilla chips for serving (check to make sure they are gluten free!)
Share this:
Make Your Own Lupus Comfort Kit
Make Your Own Lupus Comfort Kit
If you’re experiencing a flare, lemons help to flush out the body and reduce swelling. Add some sliced lemons to your water and sip throughout the day to stay hydrated!
The last thing you want to do when you’re not feeling great is to put unhealthy food into you’re body. If you’re having a difficult day make sure your lupus kit is stocked with healthy snacks like veggies and hummus, mixed nuts such as almonds and cashews, assorted berries, or sweet potato chips.
Make sure you always have something on hand. Along with keeping your prescriptions with you, medicines like Advil can help alleviate some of your pain and keep you comfortable. Remember to check with your doctor first and see which medicines are okay for you!
For that deep and uncomfortable pain, soothe the sore spot with a heating pad. They are portable and easy to use, so make sure you have one in your comfort kit at all times!
Bleed Purple For Lupus Awareness JULY 13, 2015 ~ JENNIEWHP
Bleed Purple For Lupus Awareness
Purple is an incredibly unique color. The most beautiful flowers in my opinion are a deep dark violet color. I had a purple wedding dress because I adore the color. How can you not? Purple isn’t just unique and beautiful it’s a symbol. It represents lupus awareness.This month is lupus awareness, so to show your support you could educate yourself and others about lupus and don’t forget to wear purple! 1.5 million Americans currently have Lupus. Lupus is an autoimmune disease that can possibly damage any of part of your body including skin, joints and organs. An autoimmune diseases suggest that your immune system does not know the difference between evil invaders and your healthy tissues. Generally, women ages 15-44 get lupus, but men,children, and teenagers can get lupus as well. Lupus symptoms can last for several years and it can be hard to diagnose as the symptoms mimic minor illnesses.- Fatigue
- Fever
- Joint Pain
- Stiffness
- Dry Eyes
- Headaches
- Butterfly-Shaped Rash On Face
- Fingers and Toes turn white or blue when exposed to cold or stressful periods
- Chest Pain
- Shortness of Breath
Can you imagine what it would be like to have a difficult to diagnose disease? Ian Harding, the actor in Pretty Little Liars, tells us about his mother who has lupus. Mary Harding was diagnosed with lupus when Ian was six years old. Ian recalls the days when his mother’s hands swelled and how she contently wore hats in public to protect herself from the sun. In several interviews he explained that as a child, he did not understand Lupus, but understands it more now as an adult. Ian Harding has always supported his mother, and has been working with the Lupus Foundation of America for the last two years to raise awareness. His mother would talk to her children about Lupus as it evolved in her life. Her children did not know until they were older that Lupus was possibly a fatal disease. Ian had a stronger emotional sense of the world than most of the children his age and his mother’s illness affected him greater because of it. His mother explained, “As a parent, I didn’t need to be the perfect mom, but wanted to be apart of it. I needed to show up and do the things I needed to do to raise the kids. I didn’t want my kids to grow up to think their mother was fragile.” Mary Harding did not let Lupus get in the way of being there for her family. Ian told an interviewer about his opinion on Lupus awareness and finding a cure, “I think with any chronic thing no matter how strong or strong willed you are, there comes a time you just wish it wasn’t there. The more I got involved in lupus foundation and see doctors speak on it, it feels like we are so close. I have this feeling that if we care about it a little more that would be the final push over the top.”
- Low Dose Naltrexone (LDN) is used to treat symptoms of lupus disease including fatigue, muscle pain, and joint pain. LDN helps the immune system, lowers the inflammation, and releases natural endorphins.
- Quinacrine is an Antimalarial medication used to treat lupus and rheumatoid arthritis symptoms. Quinacrine reduces inflammation and helps control skin rash in people who have lupus. This medication also may help releive muscle, joint pain, fatigue, and fever.
- Chloroquine is an Antimalarial medication used to treat Lupus and rheumatoid arthritis symptoms. This medication treats auto-immune diseases to help suppress over activity in the immune system and limits inflammation. It also helps reduce signs and symptoms of Lupus such as pain and swelling.
- Hydroxychlorquine is an Antimalarial medication used to treat symptoms of rheumatoid arthritis and lupus. This medication is used to decrease the symptoms of lupus. It helps relieve inflammation, swelling, stiffness, and joint pain.








